Endometriosis...a.k.a. CANCER

[Saephyr]

On this topic: I just moved to the Detroit area and I need a OB/GYN that can treat this logically and get off the "You neeeeeedddd to pop babies!! Nothing is more important!" thing and actuattly TREAT my issue. I have medical insurance as of next month and I'm looking to get all this jank removed and be done with this. Anybody have recommendations? They need to take Blue Cross...

<{POST_SNAPBACK}>

i know an Ob/GYN who's fantastic!

She's in Livonia and her name is Dr. Sylvia Santos-Sio

Just tell her what the issue is and also add you have a genetic disorder for passing it to your offspring and it's terminal if you REALLY don't want to be fertile anymore Pm me for details.

[Saephyr]

I need a hug!

I was just hit with some major decisoins to make due to my condition :erm

Ok I have to get an ultrasound done on Monday.

After that they schedule me for an operation where they put a scope in my bellybutton :blink and check out the damages.

I was told that afterwards I would be facing 2 choices

a) Have a baby and let my body do all the healing on it's own.

b) Hysterectomy

:tear WTF kind of options are those? My tubes ahve been tied for over 5 years and now I'm being told to end my suffering I have to commit to a lifelong station of motherhood OR just get the blessed femaleness of my body cut out and incinerated with no chance of reversal!!!???

I want hugs and ice cream dammit! :confused

[Onyx]

:( Sorry to hear that.

Very strange to me that they put it as if having a child is a medical treatment.

I mean, I could understand if they told you that IF you were planning a family that it may alleviate the problem, but to actually suggest a pregnancy as a means of treatment? Sounds like unethical medical practice to me.

?

[Saephyr]

:(  Sorry to hear that. 

Very strange to me that they put it as if having a child is a medical treatment. 

I mean, I could understand if they told you that IF you were planning a family that it may alleviate the problem, but to actually suggest a pregnancy as a means of treatment?  Sounds like unethical medical practice to me. 

?

<{POST_SNAPBACK}>

I really didn't get that either but ...I'm told it's the cureall from the Mother Nature herself. My aunt did it and she's fine. BUT an old pal of mie did it and she's NOW got endo after 3 births so WTF???

:doh

[saechalyn]

:(  Sorry to hear that. 

Very strange to me that they put it as if having a child is a medical treatment. 

I mean, I could understand if they told you that IF you were planning a family that it may alleviate the problem, but to actually suggest a pregnancy as a means of treatment?  Sounds like unethical medical practice to me. 

?

<{POST_SNAPBACK}>

I totally agree. That sounds very strange. I mean IF you were planning on having children otherwise that is one thing but... very odd.

I do know someone who had a hysterectomy at 22. A few months of wonky hormones but she says now everything is pretty much normal. A little dryness but nothing lube can't fix, and her sex drive is normal. Of course anecdotal evidence doesn't help for much.

Good luck hon

[Brenda Starrr]

  I need a hug!

I was just hit with some major decisoins to make due to my condition :erm

  Ok I have to get an ultrasound done on Monday.

  After that they schedule me for an operation where they put a scope in my bellybutton :blink  and check out the damages.

  I was told that afterwards I would be facing 2 choices

a) Have a baby and let my body do all the healing on it's own.

b) Hysterectomy

  :tear WTF kind of options are those? My tubes ahve been tied for over 5 years and now I'm being told to end my suffering I have to commit to a lifelong station of motherhood OR just get the blessed femaleness of my body cut out and incinerated with no chance of reversal!!!???

  I want hugs and ice cream dammit!  :confused

<{POST_SNAPBACK}>

I'm so sorry, sweetie. I wish I knew what to do.....

[unchaste]

  I need a hug!

I was just hit with some major decisoins to make due to my condition :erm

  Ok I have to get an ultrasound done on Monday.

  After that they schedule me for an operation where they put a scope in my bellybutton :blink  and check out the damages.

  I was told that afterwards I would be facing 2 choices

a) Have a baby and let my body do all the healing on it's own.

b) Hysterectomy

  :tear WTF kind of options are those? My tubes ahve been tied for over 5 years and now I'm being told to end my suffering I have to commit to a lifelong station of motherhood OR just get the blessed femaleness of my body cut out and incinerated with no chance of reversal!!!???

  I want hugs and ice cream dammit!  :confused

<{POST_SNAPBACK}>

My poor Saephyr! *hugs you & hands you a pint of Hagen Daas*. Let me know if you ever need anything, sweetie. Want one of my ovaries? I have two of 'em.

[EvilEve]

=(

i'm sorry to hear about this.

*hands her a half gallon of whatever kind of icecream she likes, and sends good thoughts*

[Saephyr]

I totally agree.  That sounds very strange.  I mean IF you were planning on having children otherwise that is one thing but... very odd. 

I do know someone who had a hysterectomy at 22.  A few months of wonky hormones but she says now everything is pretty much normal.  A little dryness but nothing lube can't fix, and her sex drive is normal.  Of course anecdotal evidence doesn't help for much.

Good luck hon         

<{POST_SNAPBACK}>

No no no quite the contrary. It gives me hope lady! :grin

[Nienna]

No no no quite the contrary. It gives me hope lady! :grin

<{POST_SNAPBACK}>

*HUGS* I've sooo been there! They may be able to laser off the endo with the scope. I've had that many times and it's a 2-3 day recovery and no real scarring.

I also have a good friend who had a hysterectomy at 19, due to similar issues. She's fine, says that the artificial hormones seem to be better balanced and in general better than her own were! I WISH I could get that done, to be without all this BS would be a blessing. Remember: You are not a sum of your parts. Your reproductive system does NOT make you a woman/ not a woman.

Check out this website, my mom and I both have drawn alot of stregnth and info from there: www.hystersisters.com.

[Saephyr]

Ok I admit it Nienna...I love you !

i skpiied out on my ultrasound last night due to fear. then I got depressed and could not cry to save my life :tear

I did reschedule for Friday and I want to see YOU Nienna for some fittings. ASAP

[Draco1958]

Saephyr, we met last Sat at CC. It was great meeting you. I am sending all the positive good, warm fuzzy feelings to you I can. And remember, I love tall women too....GRRRR GRRR sweetie.

[Saephyr]

thanks Draco!

:fear I just got another update!

October 14th is my 1st surgery. I'm trippin! Lapperoscopy is not fun and it is major since you get put under.

I won't be able to do a damn thing for about 3 days I bet!

Shit! Who's coming over to baby me? :erm

[Nienna]

Ok I admit it Nienna...I love you ! 

i skpiied out on my ultrasound last night due to fear. then I got depressed and could not cry to save my life  :tear

I did reschedule for Friday and I want to see YOU Nienna for some fittings. ASAP

<{POST_SNAPBACK}>

*L* Good luck with the surgery... if it's an comfort.. I usually only need pain pills for one day... and can party on by 3 days out. Hopefully it'll be good news and they can take care of it that way! If you ever need to talk or need someone to go to the appointments with you, let me know. *hUgs*

[Brenda Starrr]

I'd do it if I were there. Just don't let anyone have your Percosets.

[Saephyr]

*L* Good luck with the surgery... if it's an comfort.. I usually only need pain pills for one day... and can party on by 3 days out. Hopefully it'll be good news and they can take care of it that way!  If you ever need to talk or need someone to go to the appointments with you, let me know. *hUgs*

<{POST_SNAPBACK}>

:grin yes actually.

If you're offering Nienna, i need help. I'm not coping very well. I was already a chronic pain patient and now I may have all kinds of awful troubles. Please...if you'd like to be, I'm open for a new friendship! :tear

[Saephyr]

I'd do it if I were there. Just don't let anyone have your Percosets.

<{POST_SNAPBACK}>

Starr baby, would you believe i've been double dosing my damn Vicodin and no help.

Did the same with my Percs...no help.

NOW I have a fkn unrinary tract infection! :whistling Oh yeah I'm homocidal :woot:

[unchaste]

thanks Draco!

:fear I just got another update!

October 14th is my 1st surgery. I'm trippin! Lapperoscopy is not fun and it is major since you get put under.

I won't be able to do a damn thing for about 3 days I bet!

Shit! Who's coming over to baby me? :erm

<{POST_SNAPBACK}>

Since I live, what, three whole minutes away from you? Put me on your speed dial & I'll be there for ya. I have a lot of experience in babying people post op. My dad's had like a dozen knee surgeries, and my ma had her gallbladder taken out about a year ago. And I make awesome homemade chicken soup =)

[Saephyr]

Awwwwwww what a dollface!

No wonder we live in the Love nest!

[Homicidalheathen]

Yah if ya need me let me know. I have had so much work done to stay alive.....I am good with sick people. I feel it is my turn to pay back. I will make runs to the store or sponge bathe......whatever.

[Nienna]

You know.. Vicodin never helped me. I have alot better luck with small dose demerol patches, Tylenol 3 and Ultracet. Maybe see if those are something your doctor would try.

[Saephyr]

Yah if ya need me let me know.  I have had so much work done to stay alive.....I am good with sick people.  I feel it is my turn to pay back.  I will make runs to the store or sponge bathe......whatever.

<{POST_SNAPBACK}>

I truly need all the help I can muster!

I'm a wreck and things just keep adding up for some reason.

It will calm down and I'll have a life sometime but I miss it so I do what little I can cuz I have my pals to encourage me :whistling

[Saephyr]

You know.. Vicodin never helped me. I have alot better luck with small dose demerol patches, Tylenol 3 and Ultracet. Maybe see if those are something your doctor would try.

<{POST_SNAPBACK}>

Since the effective drug which is Oxycontin that actually works has caused such a horrid stink I'm going to ask about those for sure.

He upped my dosage to Vicodin 750 and it's just not helping. it does make me barf really well however.

[Msterbeau]

Eeeek... !!!!!!!!!!!

*Hugs for all of you*

[Saephyr]

YUP ...hugs and smooches are mandatory with us bitches