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I really wish they had explained this to us from the very beginning. Now I think I understand why the first hospice care case nurse seemed to have such a problem with us. No we didn't know Hospice Care is non-profit. No we didn't know that most of the supplies they use are donations. No we didn't know that the nurses hours get cut the longer the patient stays alive. No we didn't know you were not to feed the patient unless they asked for food. No we didn't know that to "Die with dignity" meant to waste away in a medicated stupor. Now I'm afraid of the thought of her going into respite again because at this point she can't speak anymore and I fear they won't do anything for her unless she ask them to. I fear that she won't survive 5 days in respite because they want her to waste away. Hospice is treating her like she is a drain on their resources. I wish I had known that because I would have just purchased all the supplies myself. The only thing we would then need them for would be the pain meds they have her on now. They just reopened her shoulder port and increased the amount of drug intake she is receiving to keep her comfortable and nothing else. I was going to use the time with her in respite to do another marathon build on the house to get it winterized for the season. I think I will just block her off from all the dust and particles that may spread while I work that way she can stay in her home where we can keep an eye on her.